The care partner keeps the patient on track and focussed and monitors their daily living and quality of life. The care partner provides a second set of eyes and ears because for example some patients may experience brain fog. The care partner will also validate the important information during medical visits. But more importantly, care partner empowers the patient to live the best quality of life.
I know this firsthand because I was the care partner to my late husband who passed away after a valiant battle with myelofibrosis. The key learnings I takeaway from my experience is that at the time, in the early 1990s, we should have been more educated.
So today, I am utilizing all my knowledge and fighting for the MPN community. I am motivated to help the whole ecosystem. I like to say that I am HIKE-ING for them (Hope, Inspiration, Knowledge, and Education).
*MPN: myeloproliferative neoplasms
** The CMPNRF is a Registered Charity.