The Canadian Cancer Survivor Network (CCSN) was created by a group of
Canadians concerned about cancer. When cancer is the leading cause of
death in Canada and is responsible for 30% of all deaths, there is
cause for concern.
According to the Canadian Cancer Society’s latest report, it is
- 220,400 new cancer diagnoses and 82,100 deaths will occur in
Canada in 2019.
- Lung, colorectal, breast, and prostate
cancer will account for about half of all cancer diagnoses and
deaths in 2019.
- About 1 in 2 Canadians will develop cancer
in their lifetimes and 1 in 4 will die of the disease.
of Canadians diagnosed with cancer will survive at least 5 years
after their diagnosis.
“One of CCSN’s priorities is to inform, train and involve patients,
caregivers and survivors to work with us to promote improvements and
change in all aspects of cancer care—including access to treatment and
drugs,” explains Jackie Manthorne, President and CEO, CCSN. “We
believe that the truly successful advocacy campaign must involve
patients, caregivers and survivors who share their lived experience.
What happened to them during their cancer journey must inform
healthcare and cancer care professionals, politicians and other
decision makers; from diagnosis to treatment to palliation.”
CCSN works to ensure that:
- Patients and survivors will easily access tools to understand
decision making processes for positive change on issues critical to
optimal patient care.
- Patients and survivors will be
supported to make a difference through working with others to take
action on those issues.
- Patients and survivors will obtain
current knowledge about cancer treatment, options, and outcomes and
be able to work together to end disparities in patient care and
- A network of patients, survivors, friends,
families, community partners and sponsors will work together taking
action to promote the very best standard of care, support, follow up
and quality of life for patients and survivors.
“CCSN believes in the critical importance of raising key issues
related to the mission of creating and maintaining the best standard
of care for cancer patients in Canada, regardless where they live,”
states Jackie Manthorne. “This is why we challenge all levels of
governments, participates in various meetings and summits, and concert
with other patient associations to make sure key issues such as
Employment Insurance Sickness Benefits and National Pharmacare Program
are always top of mind.”
Among all the great initiatives created by the organization, CCSN
holds webinars, with
three main streams:
- Information about new treatments or presentations about
specific cancers by patients or survivors;
- Advocacy 101
sessions, such as how to have a successful meeting with your
political representative or how to use social media/the media to get
your point of view across;
- Canada’s drug approval
Lastly, a program called The Seat at the Table was developed
by CCSN to increase the number of informed cancer patients, survivors
and caregivers sitting on cancer and other healthcare Boards, where
decisions are being made about cancer diagnosis, treatment,
post-treatment care and research funding. CCSN’s Curriculum Committee
has developed a 10-module Science of Cancer E-education course.
The 10 modules will go into pilot testing by patients, caregivers and
survivors in December, and will launch in January 2020.
CCSN’s social media includes:
- A robust, bilingual website, which includes a blog;
- Over 10,000
subscribers to their monthly E-letter;
- 8,500 likes on their
6,000 followers on their main Twitter feed (@survivornetca);
To learn more, please go to www.survivornet.ca, where you can
sign up for CCSN’s free monthly newsletter, which contains information
about CCSN’s activities and its upcoming webinars.
[i] Canadian Cancer Society. Canadian Cancer Statistics 2019. http://www.cancer.ca/en/cancer-information/cancer-101/canadian-cancer-statistics-publication/?region=on